If My Child Was Diagnosed with Autism, Should I Get Tested Too?
If your child was recently diagnosed with Autism, you may find yourself wondering:
“Should I get tested for autism too?”
The short answer: Maybe - especially if you recognize similar traits in yourself.
Autism is highly heritable, and many parents discover their own neurodivergence only after their child’s evaluation. For some, this realization feels validating. For others, it feels overwhelming. Both responses are completely normal.
Let’s talk about what to consider, signs you might explore, and how adult autism evaluations work.
Is Autism Genetic?
Yes. Research consistently shows that autism has a strong genetic component. If a child is diagnosed with autism, there is an increased likelihood that a parent or close relative may also be autistic or share autistic traits.
This doesn’t mean:
You “caused” your child’s autism
You must pursue testing
You will definitely receive a diagnosis
It simply means it’s worth paying attention if things start clicking into place.
Signs You Might Consider an Adult Autism Evaluation
Many adults, especially women, LGBTQ+ adults, and high-masking individuals, were missed in childhood because diagnostic criteria historically focused on young boys.
You might consider testing if you:
Always felt “different” but couldn’t explain why
Struggle with sensory sensitivities (noise, textures, light)
Feel exhausted after social interactions
Have intense, focused interests
Rely heavily on routines
Experience burnout that feels cyclical or unexplained
Have a history of anxiety, depression, or being “misunderstood” in therapy
For many parents, their child’s diagnosis brings into awareness the possibility they may also be autistic.
Why Would I Get Tested as an Adult?
Here are the most common reasons adults pursue autism testing:
1. Self-Understanding
A diagnosis can provide clarity and reduce shame. Many adults describe it as finally having the “missing manual.”
2. Parenting Insight
Understanding your own neurotype can help you parent your autistic child with more compassion and attunement.
3. Workplace or Academic Accommodations
Some adults seek formal documentation to access accommodations.
4. Relationship Clarity
Autism can impact communication styles, emotional expression, and sensory needs. A diagnosis can improve mutual understanding in partnerships.
What Does Adult Autism Testing Look Like?
Adult evaluations typically include:
A detailed developmental history
Clinical interviews
Standardized assessment tools
Exploration of masking and compensatory strategies
Differential diagnosis (ruling out ADHD, trauma, anxiety, etc.)
Many adults worry they will be “too high functioning” to qualify. In reality, modern evaluations consider how much effort it takes to function, not just how things look on the outside. They also take into consideration the emotional toll “fitting in” can have on people.
Emotional Reactions Are Normal
Parents often experience a mix of:
Relief
Grief
Anger about missed support
Validation
Fear about stigma
Deep recognition
If your child’s diagnosis is bringing up a lot of internal questions and thoughts, we are here to support you through it.
Should parents get tested for autism if their child is diagnosed?
Parents should consider autism testing if they recognize similar lifelong traits in themselves, struggle with sensory or social differences, or want clarity for personal, relational, or workplace reasons. Autism is highly heritable, and many adults discover their own neurodivergence after their child’s diagnosis. Testing is optional and should be based on personal benefit rather than obligation.
You Don’t Have to Decide Right Away
A child’s diagnosis can shift the entire family narrative. You can absolutely take your time deciding, and we highly recommend exploring the idea of getting tested in therapy.
If you’re looking for support in determining whether or not an assessment is the right next step for you, you can reach out here.
